Sharing decisions on reproductive goals: A mixed-methods study of the views of women who have cystic fibrosis
Background: There are complex medical, psychological, social and economic aspects to becoming a par?ent with Cystic Fibrosis (CF). A shared decision-making (SDM) approach could help women with CF make
informed decisions about their reproductive goals that are sensitive to their individual values and pref?erences. This study investigated capability, opportunity, and motivation to participate in SDM from the
perspective of women with CF.
Methods: Mixed-methods design. An international online survey was completed by 182 women with
CF, to investigate participation in SDM in relation to reproductive goals, and measures of capability (in?formation needs), opportunity (social environment) and motivation (SDM attitudes and self-efficacy) to
engage in SDM. Twenty-one women were interviewed using a visual timelines method to explore their
SDM experiences and preferences. Qualitative data were analysed thematically.
Results: Women with higher decision self-efficacy reported better experiences of SDM relating to their
reproductive goals. Decision self-efficacy was positively associated with social support, age, and level of
education, highlighting inequalities. Interviews indicated that women were highly motivated to engage in
SDM, but their capability was compromised by lack of information, perception of insufficient opportuni?ties for focused discussions about SDM.
Conclusions: Women with CF are keen to engage in SDM about reproductive health, but currently lack
sufficient information and support to do so. Interventions at patient, clinician and system levels are
needed to support capability, opportunity and motivation to engage equitably in SDM in relation to their
Published inJournal of Cystic Fibrosis
- VoR (Version of Record)
CitationD. Williams, O.B. Esan, D.K. Schlüter et al. (2023) 'Sharing decisions on reproductive goals: A mixed-methods study of the views of women who have cystic fibrosis', Journal of Cystic Fibrosis, https://doi.org/10.1016/j.jcf.2023.02.007
Cardiff Met Affiliation
- Cardiff School of Sport and Health Sciences
Cardiff Met AuthorsRhiannon Phillips
Cardiff Met Research Centre/Group
- Public Health and Wellbeing
- © The Authors