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Identities of women who have an autoimmune rheumatic disease [ARD] during pregnancy planning, pregnancy and early parenting: A qualitative study

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posted on 07.11.2022, 17:06 authored by Denitza Williams, Bethan Pell, Aimee Grant, Juila Sanders, Ann Taylor, Adrian Edwards, Ernest Choy, Rhiannon PhillipsRhiannon Phillips

 

Objective

Women of reproductive age who have autoimmune rheumatic diseases [ARDs] have expressed a need to be better supported with making decisions about pregnancy. Women with ARDs want their motherhood identities and associated preferences to be taken into account in decisions about their healthcare. The aim of this study was to explore the interplay between illness and motherhood identities of women with ARDs during preconception decision making.

Methods

Timeline-facilitated qualitative interviews with women diagnosed with an ARD [18–49 years old]. Participants were purposively sampled based on the following three criteria: thinking about getting pregnant, currently pregnant, or had young children. Interviews were thematically analysed.

Results

Twenty-two women were interviewed face-to-face [N = 6] or over the telephone [N = 16]. Interview length ranged from 20 minutes to 70 minutes, with a mean length of 48 minutes. Three main themes were identified: prioritisation, discrepancy, and trade-off. Difficulties in balancing multiple identities in healthcare encounters were reported. Women used ‘self-guides’ as a reference for priority setting in a dynamic process that shifted as their level of disease activity altered and as their motherhood identity became more or less of a focus at a given point in time. Women’s illness and motherhood identities did not present in isolation but were intertwined.

Conclusions

Findings highlight the need for holistic person-centred care that supports women with the complex and emotive decisions relating to preconception decision-making. In practice, health professionals need to consider women’s multiple and sometimes conflicting identities, and include both their condition and family associated goals and values within healthcare communication.

Funding

This study was funded by a Wellcome Trust Institutional Strategic Support Fund grant (https://wellcome.org/grant-funding/funded-people-and-projects/institutional-strategic-support-fund). The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.

History

Published in

PLoS One

Publisher

Public Library of Science

Version

VoR (Version of Record)

Citation

Williams D, Pell B, Grant A, Sanders J, Taylor A, Edwards A, et al. (2022) Identities of women who have an autoimmune rheumatic disease [ARD] during pregnancy planning, pregnancy and early parenting: A qualitative study. PLoS ONE 17(11): e0263910. https://doi.org/10.1371/journal.pone.0263910

Electronic ISSN

1932-6203

Cardiff Met Affiliation

Cardiff School of Sport and Health Sciences

Cardiff Met Authors

Rhiannon Phillips

Cardiff Met Research Centre/Group

  • Applied Psychology and Behaviour Change
  • Public Health and Wellbeing

Copyright Holder

© The Authors

Language

en

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