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Journal of Advanced Nursing - 2023 - Mc Laughlin - Feminizing care pathways Mixed‐methods study of reproductive options .pdf (812.2 kB)

Feminizing care pathways: Mixed-methods study of reproductive options, decision making, pregnancy, post-natal care and parenting amongst women with kidney disease

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posted on 2023-04-13, 15:22 authored by Leah Mc Laughlin, Caron Jones, Barbara Neukirchinger, Jane Noyes, Judith Stone, Helen WilliamsHelen Williams, Denitza Williams, Rose Rapado, Rhiannon Phillips, Sian Griffin

 

Aims: To identify the needs, experiences, and preferences of women with kidney disease in relation to their reproductive health to inform development of shared decision-making interventions. 

Design:  UK-wide mixed-methods convergent design (Sep20-Aug21). 

Methods:  Online questionnaire (n=431) with validated components. Purposively sampled semi-structured interviews (n=30). Patient and public input throughout.  

Findings:  Kidney disease was associated with defeminisation, negatively affecting current (sexual) relationships and perceptions of future life goals. There was little evidence that shared decision-making was taking place. Unplanned pregnancies were common, sometimes influenced by poor care and support and complicated systems. Reasons for (not) wanting children varied. Complicated pregnancies and miscarriages were common. Women often felt it was more important to be a ‘good mother’ than address their health needs, which were often unmet and unrecognised. Impacts of pregnancy on disease and options for alternates to pregnancy were not well understood. 

Conclusion:  The needs and reproductive priorities of women are frequently overshadowed by their kidney disease.  High quality shared decision-making interventions need to be embedded as routine in a feminised care pathway that includes reproductive health. Research is needed in parallel to examine the effectiveness of interventions and address inequalities.  

History

Published in

Journal of Advanced Nursing

Publisher

Wiley

Acceptance Date

2023-03-15

Publication Date

2023-03-31

Version

  • VoR (Version of Record)

Citation

Mc Laughlin, L., Jones, C., Neukirchinger, B., Noyes, J., Stone, J., Williams, H., Williams, D., Rapado, R., Phillips, R. and Griffin, S. (2023) 'Feminizing care pathways: Mixed‐methods study of reproductive options, decision making, pregnancy, post‐natal care and parenting amongst women with kidney disease', Journal of Advanced Nursing. doi: 10.1111/jan.15659

Print ISSN

0309-2402

Electronic ISSN

1365-2648

Cardiff Met Affiliation

  • Cardiff School of Sport and Health Sciences

Cardiff Met Authors

Rhiannon Phillips

Cardiff Met Research Centre/Group

  • Public Health and Wellbeing

Copyright Holder

  • © The Authors

Language

  • en

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