Cardiff Metropolitan University
Browse
Design for patient empowerment_ Guidelines to design for supporti.pdf (2.12 MB)

Design for patient empowerment: Guidelines to design for supporting the self-management of people living with chronic conditions

Download (2.12 MB)
conference contribution
posted on 2023-11-10, 11:52 authored by Teksin Kopanoglu, Katie BeverleyKatie Beverley, Dominic Eggbeer, Andrew WaltersAndrew Walters

 Management of a chronic condition can be challenging, yet expectations from patients towards self-management have been increasing. Patient empowerment in chronic condition care has been gaining attention as a way of increasing the quality of life of patients and sustaining the limited resources of healthcare services. Design has the potential to facilitate empowerment through the designed products and services, yet how this can be achieved has not been explored. In this paper, we investigate empowerment from the patient’s perspective and present design guidelines to facilitate empowerment. A design research approach was followed utilising design probes. Research methodsinclude observation, interview, cultural probe and co-making workshop. The study was conducted with people living with a chronic condition called lymphoedema and their healthcare providers. This study presents that, patient empowerment is beyond increased power in decision-making, and is associated with everyday life with its competing priorities and un-prescribed adaptations to self-management. We propose that an individual’s readiness for empowerment should be considered to provide the right support at the right time for the patient. In this study, the rich everyday chronic condition experiences are transferred into design guidelines to contribute to the development of future self-management support. 

History

Presented at

DRS2022: Bilbao, 25 June - 3 July, Bilbao, Spain

Published in

DRS2022: Bilbao, 25 June - 3 July

Publisher

DRS

Version

  • VoR (Version of Record)

Citation

Kopanoglu, T., Beverley, K., Eggbeer, D., and Walters, A. (2022) Design for patient empowerment: Guidelines to design for supporting the self-management of people living with chronic conditions, in Lockton, D., Lenzi, S., Hekkert, P., Oak, A., Sádaba, J., Lloyd, P. (eds.), DRS2022: Bilbao, 25 June - 3 July, Bilbao, Spain. https://doi.org/10.21606/drs.2022.530

Cardiff Met Affiliation

  • PDR

Cardiff Met Authors

Teksin Kopanoglu Katie Beverley Dominic Eggbeer Andrew Walters

Copyright Holder

  • © The Authors

Language

  • en

Usage metrics

    PDR Research - Conference Papers

    Exports

    RefWorks
    BibTeX
    Ref. manager
    Endnote
    DataCite
    NLM
    DC